Stephanie Clair Knight lost her four-year battle with Ewing’s Sarcoma on May 22nd 2013.
Stephanie was so brave during this time and she focused on hope and what she could do to help others. She started to fundraise to make a difference to other young people who were in the same situation as her and she did this even in her darkest hour, never losing sight of hope and she remained positive about the future.
She inspired many to do the same and her ability to make people smile in the most desperate of times was infectious. #holdontohope
Stephanie spent four years from 2009-2012 fundraising and raising awareness of teenage cancers, working with the Teenage Cancer Trust, for whom she was a young ambassador. She was a committee member of the Royston in Blue fun run and took part in Race For Life in 2010 and 2011. She helped to raise approximately £40,000. She was awarded the young achiever's award in Hertfordshire for her fundraising in 2011.
In April 2012, during a routine screening, we were told her cancer had returned in the same place and she was admitted back into Addenbrooke's Hospital. She then started an even more aggressive course of chemotherapy. Unfortunately, it wasn’t having the effect that we had all hoped. We were then given the bad news that if Stephanie had any chance of survival she would need a major operation to remove her right hip, pelvis and leg. We were all so shocked but knew that it was Steph’s only chance to survive although there was still no guarantee that she would live cancer free. The operation was carried out on Monday 8th October 2012 and was a success, the cancer was gone! She was allowed home on the 29th November 2012. She turned twenty-one in the December; a huge party was thrown and Stephanie looked amazing and was so brave. She spent Christmas with her family but was in so much pain that on 29th December she was re-admitted to Addenbrooke's. On New Year's Day 2013 we were told that the cancer was back and Stephanie’s condition was incurable. She would only have months to live. We were all heartbroken.
But Stephanie set about making a 'bucket list' that would leave behind amazing family memories for her family and friends. So between January and April 2013, Steph, her family and friends did some wonderful things together. Spa days, trips to the seaside, visiting the Ice Bar and meeting some pretty famous people!
During this time, Stephanie decided she would like to set up her own charity to help other young people with recurring or terminal cancer have memories with their families, as we had found that the second time round you are not offered as much help or support from other cancer charities.
Sadly, Stephanie’s condition took a dramatic downturn at the end of April 2013 and she was given days to live. But in true Stephanie style she fought hard for five weeks, still doing small things, such as having a takeaway and fireworks nights with friends and family. Stephanie’s will to live was so strong but devastatingly on May 22nd 2013 she could not fight any longer and peacefully passed away with her family around her.